The MSBase Registry is a research registry. Research registries are also known as a research databases. They collect information about lots of people, often who all have the same health condition. The objective of the MSBase Registry is to enroll patients with supported neuroimmunological diseases from centres worldwide and to follow up with them at least annually, for an ongoing indefinite period. The Registry collects observational health and medical information about a number of neuroimmunological diseases (NIDs), including MS, NMO, anti-MOG and MG.
The MSBase Registry has several aims:
To collect long-term clinical information from a large group of patients with neuroimmunological diseases, including NMO, anti-MOG, MG and MS, or a single episode of symptoms suggestive of MS. To enable researchers to prospectively evaluate long term treatment effects and the safety of current and future disease modifying therapies in standard clinical practice. To enable researchers to document disease outcomes in different areas of the world. The data obtained from the Registry is used in studies that aim to improve quality of care by evaluating outcomes in a large global group of people with NIDs including MS, MG, NMO and anti-MOG. The collected data relating to you may be used for medical or scientific research and may be published in scientific journals. A Global Scientific Leadership Group of leading MS specialists that reports to the MSBase Foundation will closely monitor and approve any analysis of the data to ensure it is only used in ways that align with the MSBase Foundation’s Mission, Vision and Values and the purposes of its Registry’s Observational Study.